Tumor Resources

MY CASE AND TREATMENT

This page is for people who are facing a tumor diagnosis, their families, friends or anyone who is interested in learning more about tumors in general and spheno-orbital meningiomas in particular.

Naomi MRI 3

Naomi MRI 2

Naomi Ishisaka MRI 1

MRI scans above (screen grabs, email me if you want the entire 3-D scan)

MRI findings

Surgery completed: Right frontal-temporal craniotomy for tumor with orbital reconstruction, Sept. 15 at 6 a.m. The surgery, expected to take 4-6 hours, ended up taking 12, including three blood transfusions. For more details on the surgery, you can read my sister’s detailed account here or see the surgical notes / chart downloadable below.

Surgical Chart/Notes: All the notes from the neurosurgeons regarding the frontal-temporal craniotomy with orbital reconstruction and orbitectomy to remove or resect a spheno-orbital intraosseous meningioma, obstacles they encountered and workarounds they devised. Download the chart here.

RESOURCE LINKS

American Brain Tumor Association – Resources for patients, families on brain tumors, treatment

Brain tumor support groups – A listing of brain tumor support groups

National Brain Tumor Society – top-notch resources and caring support for everyone affected by brain tumors.

Brain Tumor Foundation – The Brain Tumor Foundation treats the whole patient by addressing their social, financial and emotional needs.

It’s Just Benign – A group connecting brain tumor survivors everywhere.

OTHER BLOGS

Kevin Lee’s Blog – about his brain surgery experience

Dante Salvatierra – “Dubya the Tumor: It’s all in your head” blog (LOVE the title!)

Me, Myself and Meningioma

Taking it in Stride

Tina’s Adventure